Pathology consultations and clinical oncology consultations are available promptly from the PPB Registry at no charge. Registry enrollment will be encouraged when a case is brought to our attention.
The secured PPB Registry Treatment and Biology Registry Information Portal provides physicians with a copy of the Registry’s treatment protocol and consent forms, and the pathology.
The International PPB/DICER1 Registry is not a part of, nor funded by, any cooperative oncology group, although Children’s Oncology Group Rare Tumor Sub-Committee recognizes the Registry as a major collection of PPB cases.
For consultation, contact the Registry at:
The International Pleuropulmonary Blastoma / DICER1 Registry
Children’s Hospitals and Clinics of Minnesota
910 East 26th Street, Suite 40-LLO8
Minneapolis, MN 55404
Families may contact the Registry and reasonable attempts will be made to answer their questions. However, the Registry will encourage families to rely on their local pediatric oncology referral center for decisions and treatment.