With research comes progress. We are excited to host our free annual DICER1 Symposium as a hybrid event on Thursday, May 16th, 2024 at 9:30 a.m. CDT.
Virtual and in-person attendance are free. CME, CNAA, and CEU credit are available. For individuals planning to request genetic counselor CEUs, a $35 fee is payable at the time of registration.
Virtual registration closes Thursday, May 16, at 9:30 a.m. CDT.
In-person registration closes Thursday, May 2, at noon CDT.
Define optimal therapy for PPB, Sertoli-Leydig cell tumor and other DICER1-related cancers
Validate testing and surveillance guidelines for children and adults with germline DICER1 variations
Develop new ways to diagnose and follow children with DICER1-related cancers
Discover new therapies for DICER1-related cancers
Clinicians are invited to connect with the Registry regarding participation of individual patients, potential collaborations and other questions.
Please see separate sections of the website regarding individual tumor types and information regarding DICER1.
Pathologists are invited to connect with the Registry regarding free central pathology review (no charge to institution or patient/family).
Left over tumor tissue (tumor tissue removed for a clinical reason but not needed for clinical care) is studied for several purposes:
We encourage all treating physicians and families to consider participating in the Registry to allow sharing of clinical data and tumor tissue.
We offer free central reviews by Registry pathologists to review/confirm the diagnosis of PPB and all other DICER1 disease states. Please fill out the form(s) and email them to [email protected].
Radiologists, please fill out the form(s) here and email them to [email protected].