Clinicians are invited to connect with the Registry regarding participation of individual patients, potential collaborations and other questions.
Please see separate sections of the website regarding individual tumor types and information regarding DICER1.
Pathologists are invited to connect with the Registry regarding free central pathology review (no charge to institution or patient/family).
View the specimen transmittal form.
Left over tumor tissue (tumor tissue removed for a clinical reason but not needed for clinical care) is studied for several purposes:
We encourage all treating physicians and families to consider participating in the Registry to allow sharing of clinical data and tumor tissue.
We offer free central reviews by Registry pathologists to review/confirm the diagnosis of PPB and all other DICER1 disease states. Please fill out the form(s) and email them to [email protected].
Specimen transmittal form
Radiologists, please fill out the form(s) here and email them to [email protected].
Consultation form