Protocol and Study

Health professionals can access the PPB Registry Treatment and Biology Study Protocol Portal for more details and participant enrollment forms.

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Include Your Child

Family members can enroll their child using a consent form to authorize their child’s hospital and physicians to share information with the PPB Registry.

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Over 25 Years

Financial gifts in any amount
are always appreciated and
will help ensure that families
and health care providers will
benefit from the Registry for
years to come.

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The International Pleuropulmonary Blastoma (PPB) Registry is a resource for physicians, healthcare providers and families, offering valuable information about this rare childhood lung tumor. We encourage the collection of biological data to seek the cause of PPB and its possible genetic links, as well as collaborate with physician and families around the world in caring for those diagnosed with PPB.

PPB Registry Goals

Confirm

Offer real-time central pathology review available for all suspected cases of PPB

Treat

Provide latest PPB diagnostic and treatment information to medical providers

Enroll

Encourage Registry enrollment for all confirmed cases of PPB to add to the Registry's body of knowledge

Research

Further explore potential genetic causes of PPB and PPB-related diseases

Educate

Provide education and support services to families worldwide while disseminating Registry findings within the medical community

Your gift holds great power.

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Enrolling in the Registry

Both families and physicians may initiate the enrollment process. Physicians can access the protocol and forms
from the Registry Information Portal. Families should email the Registry, [email protected] for consents.

IN COLLABORATION WITH:

Children's Minnesota

St. Paul and Minneapolis

Children's National Medical Center

Washington D.C.

Washington University Medical Center

St. Louis, MO

Data and recommendations on this site are conscientiously presented but some are unpublished observations and have not undergone peer review. Consultation with the Registry is encouraged to clarify any topics. The International PPB Registry advises caution in the citation of website information.

We welcome your questions or comments. Please submit all inquiries to the following address or to the fax number displayed below:

The International Pleuropulmonary Blastoma Registry
Pediatric Oncology
Children's Hospitals and Clinics of Minnesota
910 E. 26th St., Ste. LL08

Minneapolis, MN 55404

Phone: 612-813-7121 | Fax: 612-813-7108