The International Pleuropulmonary Blastoma (PPB) / DICER1 Registry is a resource for physicians, healthcare providers and families, offering valuable information about this rare childhood lung tumor. We encourage the collection of biological data to seek the cause of PPB and its possible genetic links, as well as collaborate with physician and families around the world in caring for those diagnosed with PPB.
PPB/DICER1 Registry Goals
Offer real-time central pathology review available for all suspected cases of PPB
Provide latest PPB diagnostic and treatment information to medical providers
Encourage Registry enrollment for all confirmed cases of PPB to add to the Registry's body of knowledge
Further explore potential genetic causes of PPB and PPB-related diseases
Provide education and support services to families worldwide while disseminating Registry findings within the medical community
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