Enroll Now

The International PPB/DICER1 Registry Enrollment

Families who want to include their child’s information in the PPB/DICER1 Registry should review the For Families page on this website in order to understand the purpose of the Registry and the protection of patient privacy in use of Registry data. The family should then contact the Registry, (612.813.7121 or This email address is being protected from spambots. You need JavaScript enabled to view it.) to request Registry consent forms which will authorize their child’s hospital and physicians to give information to the Registry.

New Scientific Study of PPB Causes

The International PPB/DICER1 Registry is conducting a major study of genetic inheritance in PPB patients and their families. We ask that all PPB patients and their families consider participating. Visit http://www.ppbgeneticstudy.org/ or ppb.cancer.gov for more information.