How to enroll in the registry

Fill out the contact form on this page.
The registry team will send you an email with consent forms and additional information.
***Please check your junk/spam email folders as the Registry's emails can sometimes end up there***
Complete and sign the consent forms.
Send completed forms back to the registry (DocuSign, email, fax or mail accepted).

Download Specimen transmittal form

The International Pleuropulmonary Blastoma / DICER1 Registry
Phone: 612-813-7121
Fax: 612-813-7108
Email: [email protected]