Appendix/Data Resources

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Compilation: High-Dose Chemotherapy with Stem Cell Reconstitution (HDCT + ASCR Table)
Compilation: Cases of Cystic Nephroma Associated with PPB
Compilation: Dysplastic and Neoplastic Conditions in PPB Patients and their Families
Compilation: Neo-Adjuvant Chemotherapy Results
Click here to read the 2009 AACR abstract

Enrolling in the Registry

Both families and physicians may initiate the enrollment process. Physicians can access the protocol and forms
from the Registry Information Portal. Families should email the Registry, [email protected] for consents.

IN COLLABORATION WITH:

Children's Minnesota

St. Paul and Minneapolis

Children's National Medical Center

Washington D.C.

Washington University Medical Center

St. Louis, MO

Data and recommendations on this site are conscientiously presented but some are unpublished observations and have not undergone peer review. Consultation with the Registry is encouraged to clarify any topics. The International PPB Registry advises caution in the citation of website information.

We welcome your questions or comments. Please submit all inquiries to the following address or to the fax number displayed below:

The International Pleuropulmonary Blastoma/DICER1 Registry
Pediatric Oncology
Children's Hospitals and Clinics of Minnesota
910 E. 26th St., Ste. LL08

Minneapolis, MN 55404

Phone: 612-813-7121 | Fax: 612-813-7108