For Pediatric Oncologists, Data Managers, and Other Physical Caregivers

Thank you for contacting the International Pleuropulmonary Blastoma (PPB) / DICER1 Registry. Logging onto the PPB Registry Treatment and Biology Registry information Portal will provide you with complete details for treating Types I, II and III PPB.

If this is your first time accessing the new PPB/DICER1 Registry Portal, please submit your email address by typing your information into the Request More Information box. You will then be guided through a few simple steps to confirm your new login. You will then receive access to the protocol.

A Registry review of pathology is the essential first step for each suspected case of PPB. There is no charge to the institution or patient.

The Registry is not-for-profit but we may have limited funding to assist you with costs related to opening the Registry at your institution. Please contact us to receive further information.

Sincere regards,
The PPB/DICER1 Registry team