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The International Pleuropulmonary Blastoma Registry
The International Pleuropulmonary Blastoma Registry
The Genetics of PPB

Critical Issues


Constitutional & Familial Issues: Genetics of PPB:


A Very Rare Disease: Enrolling Patients in the Registry


Cerebral Metastases in PPB


Genetic Study of PPB


PPB Associated with Cystic Nephroma and Other Renal Tumors


Type I PPB: Treatment Issues


Type II and III THERAPY RECOMMENDATION CHANGE

Join Our PPB Study

Whats New

04/09/2010
2010 PPB FAMILY WEEKEND IN WASHINGTON DC

02/15/2007
THERAPY CHANGE: PPB Types II and III

11/15/2006
PPB, Cystic Nephroma & Small Bowel Polyps

10/01/2005
Genetic Study in PPB - PPB Tissue Bank

Critical Issues
2010 PPB FAMILY WEEKEND: Save-the-Date
The 2010 PPB Family Weekend will be Friday, July 30 - Sunday, August 1 in Washington, DC.The meeting brochure with complete details and registration form was mailed to families in early May. Contact Gretchen at gretchen.williams@childrensmn.org if you didn't receive one. Additional information about the meeting may also be found at http://www.ppbfamily.org/weekend.shtml.

2008 PPB Family Weekend DVDs available. Children’s Hospitals and Clinics of Minnesota hosted the second Pleuropulmonary Blastoma (PPB) Family Weekend August 8-10, 2008 in Bloomington, Minnesota. DVDs, which contain the scientific portions of the meeting as well as the tribute to children with PPB, are available to families at no charge. Please e-mail Ann at: gretchen.williams@childrensmn.org to request your copy.

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Data and recommendations on this site are conscientiously presented but some are unpublished observations and have not undergone peer review. Consultation with the Registry is encouraged to clarify any topics. The International PPB Registry advises caution in the citation of website information.
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