Forms, Schemas, and Roadmaps

To collect a large group of Types I, II and III PPB patients for event-free and overall survival analysis, the PPB Registry is enrolling participants on the new Treatment and Biology Registry protocol.

PPB Registry Treatment Recommendations: PPB therapy choices are the decision of each institution. The Treatment and Biology Registry presents surgery and chemotherapy guidelines. Through the Treatment and Biology Registry protocol study it is anticipated that analysis of a group of similarly treated children with PPB will advance the knowledge of effective ways to treat PPB. The secured PPB Registry Treatment and Biology Registry Information Portal provides physicians further details for treating Types I, II and III PPB, including a copy of the Registry’s treatment protocol and consent forms.

The International PPB Registry is not a part of, nor funded by, any cooperative oncology group, although Children’s Oncology Group Rare Tumor Sub-Committee recognizes the Registry as a major collection of PPB cases.

The secured PPB Registry Treatment and Biology Registry Information Portal provides physicians further details for treating Types I, II, and III PPB, including a copy of the Registry’s treatment protocol and consent forms.