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The International Pleuropulmonary Blastoma Registry
The International Pleuropulmonary Blastoma Registry
The Genetics of PPB

Critical Issues


Constitutional & Familial Issues: Genetics of PPB:


A Very Rare Disease: Enrolling Patients in the Registry


Cerebral Metastases in PPB


Genetic Study of PPB


PPB Associated with Cystic Nephroma and Other Renal Tumors


Type I PPB: Treatment Issues


Type II and III THERAPY RECOMMENDATION CHANGE

Join Our PPB Study

Whats New

04/09/2010
2010 PPB FAMILY WEEKEND IN WASHINGTON DC

02/15/2007
THERAPY CHANGE: PPB Types II and III

11/15/2006
PPB, Cystic Nephroma & Small Bowel Polyps

10/01/2005
Genetic Study in PPB - PPB Tissue Bank

Registry Forms
Pathology Review and Tissue Submission Forms

To view the following files you will need Adobe Acrobat Reader. To download Acrobat Reader click here. Please submit all forms to the following:
The International Pleuropulmonary Blastoma Registry
Pediatric Oncology
Children’s Hospitals and Clinics of Minnesota
2545 Chicago Ave. S., Suite 412
Minneapolis, MN 55404

To provide patient privacy, the PPB Registry will strip all identifying information from documents it receives.

Parental Consent Pathology Review and Tissue Submission Forms

Chemotherapy Schemas and Roadmaps

For Type I PPB, the Registry suggests that physicians send pathology to the Registry for review and, depending on the Type I findings, consider use of VAC chemotherapy.

For Types II and III PPB, the Registry recommends therapy using ifosfamide, doxorubicin, vincristine and actinomycin D (IVADo). Please contact the Registry for specific details including schema and roadmaps.

New Scientific Study of PPB Causes

The International PPB Registry is conducting a major new study of genetic inheritance in PPB patients and their families. We ask that all PPB patients and their families consider participating. A detailed family medical history and a small blood sample are required. Please contact the Registry by phone at 612-813-7115 or by e-mail at gretchen.williams@childrensmn.org for more information.

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Data and recommendations on this site are conscientiously presented but some are unpublished observations and have not undergone peer review. Consultation with the Registry is encouraged to clarify any topics. The International PPB Registry advises caution in the citation of website information.
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