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The International Pleuropulmonary Blastoma Registry
The International Pleuropulmonary Blastoma Registry
Registry Forms
Pathology Review and Tissue Submission Forms

To view the following files you will need Adobe Acrobat Reader. To download Acrobat Reader click here. Please submit all forms to the following:
The International Pleuropulmonary Blastoma Registry
Pediatric Oncology
Children’s Hospitals and Clinics of Minnesota
2545 Chicago Ave. S., Suite 412
Minneapolis, MN 55404

To provide patient privacy, the PPB Registry will strip all identifying information from documents it receives.

Parental Consent Pathology Review and Tissue Submission Forms

Chemotherapy Schemas and Roadmaps

For Type I PPB, the Registry suggests that physicians send pathology to the Registry for review and, depending on the Type I findings, consider use of VAC chemotherapy.

For Types II and III PPB, the Registry recommends therapy using ifosfamide, doxorubicin, vincristine and actinomycin D (IVADo). Please contact the Registry for specific details including schema and roadmaps.

New Scientific Study of PPB Causes

The International PPB Registry is conducting a major new study of genetic inheritance in PPB patients and their families. We ask that all PPB patients and their families consider participating. A detailed family medical history and a small blood sample are required. Please contact the Registry by phone at 612-813-7115 or by e-mail at gretchen.williams@childrensmn.org for more information.

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Data and recommendations on this site are conscientiously presented but some are unpublished observations and have not undergone peer review. Consultation with the Registry is encouraged to clarify any topics. The International PPB Registry advises caution in the citation of website information.
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