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The International Pleuropulmonary Blastoma Registry
The International Pleuropulmonary Blastoma Registry
The Genetics of PPB

Critical Issues


Constitutional & Familial Issues: Genetics of PPB:


A Very Rare Disease: Enrolling Patients in the Registry


Cerebral Metastases in PPB


Genetic Study of PPB


PPB Associated with Cystic Nephroma and Other Renal Tumors


Type I PPB: Treatment Issues


Type II and III THERAPY RECOMMENDATION CHANGE

Join Our PPB Study

Whats New

04/09/2010
2010 PPB FAMILY WEEKEND IN WASHINGTON DC

02/15/2007
THERAPY CHANGE: PPB Types II and III

11/15/2006
PPB, Cystic Nephroma & Small Bowel Polyps

10/01/2005
Genetic Study in PPB - PPB Tissue Bank

Consultation
Pathology consultations and clinical oncology consultations are available promptly from the PPB Registry at no charge. Registry enrollment will be encouraged when a case is brought to our attention.

Pathology:

For pathology/diagnostic confirmation or Registry enrollment central pathology review, please go to Submitting Pathology for Diagnostic Confirmation or Registry Enrollment Attachment or contact a Registry pathologist.

Oncology:

For oncology consultation, contact the Registry at:

The International Pleuropulmonary Blastoma Registry
Pediatric Oncology
Children’s Hospitals and Clinics of Minnesota
2545 Chicago Ave. S., Suite 412
Minneapolis, MN 55404
Phone: 612-813-7115
Fax: 612-813-7108

Families:

Families may contact the Registry and reasonable attempts will be made to answer their questions. However, the Registry will encourage families to rely on their local pediatric oncology referral center for decisions and treatment.

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Data and recommendations on this site are conscientiously presented but some are unpublished observations and have not undergone peer review. Consultation with the Registry is encouraged to clarify any topics. The International PPB Registry advises caution in the citation of website information.
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