Background & Purpose Registry Personnel What is the Registry? What the Registry provides? What the Registry Wants? Enroll Basic Facts about PPB PPB Types: I, II & III Signs and Symptoms Age at Diagnosis / Gender / Laterality Prognosis Metastasis PPB Critical Issues Constitutional / Syndrome & Familial Disease Registry Personnel Radiography Surgery Pathology PPB Types: I, II & III Progression of Type Type I Pathology Diagnosis and Differential Diagnosis Type II & III Pathology Diagnosis and Differential Diagnosis Differentiation from Adult Pulmonary Blastoma Immunohistochemistry Ultrastructural Findings Fine Needle Aspiration Cytology Pathology of Metastases Recommended Path Studies Special Studies/Tumor Cytogenetics Pathology Consultation Recommendations Staging Treatment Lung Cysts Type I Type II and III Recurrences & Metastases Stem Cell Therapy Surveillance Appendix/Data Resources Forms, Schemas, and Roadmaps Consultation Enroll Now Basics of PPB What Causes PPB? Different Types of PPB Treatment Surgery Chemotherapy Radiation Therapy Does PPB Spread? Recurrence/Relapse Family/Genetic Issues Who Should Treat PPB? What Can Families Do? Enroll Now Definitions/Glossary Genetic Study/Tissue Bank For Families For Pathologists For Pediatric Oncologists, Data Managers, and Other Physical Caregivers All Forms Pathology Review and Tissue Submission Forms Parental Authorization Chemotherapy Schemas and Roadmaps

Constitutional & Familial Issues: Genetics of PPB: A Very Rare Disease: Enrolling Patients in the Registry Cerebral Metastases in PPB Genetic Study of PPB PPB Associated with Cystic Nephroma and Other Renal Tumors Type I PPB: Treatment Issues Type II and III THERAPY RECOMMENDATION CHANGE 04/09/2010 2010 PPB FAMILY WEEKEND IN WASHINGTON DC 02/15/2007 THERAPY CHANGE: PPB Types II and III 11/15/2006 PPB, Cystic Nephroma & Small Bowel Polyps 10/01/2005 Genetic Study in PPB - PPB Tissue Bank

We are a collection of physicians, scientists, and data analysts from many institutions who have been working together for 20 years to evaluate cases of PPB. Our main bases of operation are the Childrens' Hospitals and Clinics of Minneapolis and St. Paul, Minnesota, for clinical care issues (visit the Children's Hospital website), and Barnes-Jewish and St. Louis Children's Hospitals, St. Louis, Missouri, for pathology issues. Personnel working with the PPB Registry are listed on the Registry Participants. We are funded mainly by an annual charity tennis tournament dedicated to research in pediatric oncology (Pine Tree Apple Tennis Classic), by the Randy Shaver Cancer Research and Community Fund, and by the Theodora H. Lang Charitable Trust. We are entirely non-profit, interested only in clinical and scientific advancements. There are no charges for information from the Registry. We are interested in clinical data on any case of PPB, from symptoms through diagnosis through treatments through long-term follow-up. We are also interested in studying certain biological features of this disease from the standpoint of basic science. The PPB Registry is affiliated with the Rare Tumor Sub-Committee of the Children's Oncology Group (COG), a collection of hospitals in the United States, Canada, Australia, New Zealand, and parts of Europe; the registry is not a formal part of nor supported by COG. The Registry collects cases of PPB for COG.

Home  |  Contact

Copyright © The International PPB Registry. All rights reserved. P: 612-813-7115 F: 612-813-7108

Data and recommendations on this site are conscientiously presented but some are unpublished observations and have not undergone peer review. Consultation with the Registry is encouraged to clarify any topics. The International PPB Registry advises caution in the citation of website information. Minneapolis Web Design by First Scribe.