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The International Pleuropulmonary Blastoma Registry
The International Pleuropulmonary Blastoma Registry
The Genetics of PPB

Critical Issues


Constitutional & Familial Issues: Genetics of PPB:


A Very Rare Disease: Enrolling Patients in the Registry


Cerebral Metastases in PPB


Genetic Study of PPB


PPB Associated with Cystic Nephroma and Other Renal Tumors


Type I PPB: Treatment Issues


Type II and III THERAPY RECOMMENDATION CHANGE

Join Our PPB Study

Whats New

04/09/2010
2010 PPB FAMILY WEEKEND IN WASHINGTON DC

02/15/2007
THERAPY CHANGE: PPB Types II and III

11/15/2006
PPB, Cystic Nephroma & Small Bowel Polyps

10/01/2005
Genetic Study in PPB - PPB Tissue Bank

Registry Personnel
Pediatric Oncology:
Yoav Messinger, M.D. Children's Hospitals and Clinics of Minnesota
2545 Chicago Ave. S., Suite 412
Minneapolis, MN 55404
USA
Phone: 651-220-6732
Fax: 651-220-6787
yoav.messinger@childrensmn.org
Pathology:
Louis P. Dehner, M.D. Lauren V. Ackerman Laboratory of Surgical Pathology Barnes-Jewish and St. Louis Children’s Hospitals Washington University Medical Center
60 South Euclid Avenue
Division of Anatomic Pathology
Box 8118
St. Louis, MO 63110
USA
Phone: 314-362-0104
Fax: 314-747-2040
dehner@path.wustl.edu
D. Ashley Hill, M.D.

Children's National Medical Center
111 Michigan Ave. NW
Division of Surgical Pathology
Washington D.C. 20010
USA
Phone: 202-476-2815
Fax: 202-476-4030
dashill@cnmc.org

Michael McDermott, MRCPath Our Lady's Hospital for Sick Children
Consultant Histopathologist
Crumlin
Dublin, 12
Ireland
Phone: 353-1-409-6100
Fax: 353-1-409-6218
michael.mcdermott@olhsc.ie
Maureen O'Sullivan, MB, M.D. Our Lady's Hospital for Sick Children
Consultant Histopathologist
Crumlin
Dublin, 12
Ireland
Phone: 353-1-409-6100
Fax: 353-1-409-6218
maureen.osullivan@olhsc.ie
Research Management:

John R. Priest, M.D., MBA

 

Research Director
International PPB Registry, Children's Hospitals and Clinics of Minnesota
2545 Chicago Ave. S., Suite 412; Minneapolis, MN 55404
USA
Phone: 612-813-7115
Fax: 612-813-7108
jprst@prodigy.net
Phone: 612-813-7115
Fax: 612-813-7108

Pharmacy:
Charlet Allen, BS, RPh Children's Hospitals and Clinics of Minnesota
345 N Smith Ave.
Hematology/Oncology Clinic
MS 70-301
St. Paul, MN 55102
USA
Phone: 651-220-6658
Fax: 651-220-6787
charlet.allen@childrensmn.org
Data Collection and Management:
Gretchen Williams, BS, CCRP

Research Coordinator
Children's Hospitals and Clinics of Minnesota
2545 Chicago Ave. S., Suite 412 Minneapolis, MN 55404
USA
Phone: 612-813-7115
Fax: 612-813-7108
gretchen.williams@childrensmn.org

 
Jennifer Ivanovich, MS, MBA Genetics Study Coordinator
Hereditary Cancer Core
The Alvin J. Siteman Cancer Center
660 S. Euclid Ave, Box 8100
St. Louis,MO 63110
USA
Phone: 314-454-5076
Fax: 314-454-8051
jen@ccadmin.wustl.edu
Kristine L. Doyle Web-based literature researcher klpdoyle@verizon.net
Statistical Analysis:
Marsha Finkelstein, MS Statistician
Center for Care Innovation and Research
Children's Hospitals and Clinics of Minnesota
2525 Chicago Ave. S
MS 32-4150
Minneapolis, MN 55404
USA
Phone: 612-813-6329
marsha.finkelstein@childrensmn.org
Home  |  Contact
Data and recommendations on this site are conscientiously presented but some are unpublished observations and have not undergone peer review. Consultation with the Registry is encouraged to clarify any topics. The International PPB Registry advises caution in the citation of website information.
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