About

This website provides information For Families and For Physicians/Caregivers on the rare childhood chest tumor known as “pleuropulmonary blastoma” or “PPB”. This tumor has occurred for years, but because of its rarity, it has come under concerted medical scrutiny only since the mid-1980’s. With the cooperation of families and physicians all over the world, we have been collecting cases of PPB for 20 years. Through this accumulation of information, we have begun to understand some of the biological and treatment issues of this disease and have published several articles (see Registry Publications). Of course, many others have also made important observations and published information (see Pub Med or Google Scholar). We continue to collect cases and we ask for help in this regard from all families and all caregivers.

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